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UID:20260724T135116BST-455076lvvA@https://institutemh.org.uk/
DTSTAMP:20260724T125116Z
DESCRIPTION:Centre for Dementia online lunchtime seminar:Priority Setting f
 or Research about Dementia and Hearing Conditions in Partnership with Stak
 eholders\nHearing loss is one of the largest modifiable risk factors for t
 he development of dementia and is common amongst people living with dement
 ia. This seminar outlines two approaches to engaging with people living wi
 th dementia and/or hearing conditions\, their supporters (e.g.\, relatives
 \, carers)\, and health and social care professionals (e.g.\, audiologists
 \, physicians\, care home staff) to identify priorities for future researc
 h in this field.\nFirst\, we will discuss a novel James Lind Alliance Prio
 rity Setting Partnership (JLA PSP) for co-existing dementia and hearing co
 nditions. This is the first JLA PSP to combine two different health condit
 ions. It brings together people with lived experience\, supporters\, and c
 linicians on an equal footing to identify the most important unanswered re
 search questions about co-existing dementia and hearing conditions. Tradit
 ional JLA PSP processes have been amended to be inclusive of groups that a
 re often under-served by research\, including people living with dementia\
 , sign language users\, and ethnic minority communities. Activities includ
 ed a national survey to develop a list of research questions about co-exis
 ting dementia and hearing conditions. Published evidence is currently bein
 g reviewed to ascertain whether these questions are answered\, partially a
 nswered\, or unanswered. Next\, we will conduct a second national survey t
 o develop a shortlist of the research questions. Finally\, we will conduct
  a consensus workshop using the nominal group technique to agree the top t
 en most important research questions.\nSecond\, we will describe the findi
 ngs of qualitative focus groups with people who live with dementia and hea
 ring loss\, including their supporters and professional carers. The focus 
 groups explored stakeholder experiences related to caring for people livin
 g with dementia and hearing loss\, as well as the challenges of delivering
  patient-centred care in social care settings. These priority setting acti
 vities will help ensure that future research about co-existing dementia an
 d hearing conditions is as meaningful and impactful as possible to the peo
 ple who most need it. Highlighted stakeholder experiences and priorities w
 ill be used to ground the development of future research proposals and gra
 nt applications in lived experience.\n \nSpeakers:\nDr Eithne Heffernan & 
 Dr Emma Broome\nSpeaker biographies:\nDr Eithne Heffernan is a Senior Rese
 arch Fellow at the NIHR Nottingham Biomedical Research Centre. She current
 ly leads the James Lind Alliance Priority Setting Partnership for Co-exist
 ing Dementia and Hearing Conditions. She also leads an NIHR-funded study t
 hat aims to co-design a toolkit to improve the inclusion of under-served g
 roups in dementia and hearing research. In addition\, she holds an NIHR Sc
 hool for Primary Care Research Postdoctoral Fellowship\, which examines ba
 rriers and facilitators to accessing primary care services for adults livi
 ng with hearing loss. Her previous research focused on social isolation in
  people living with hearing loss.\nEithne is a member of the INTERDEM Acad
 emy Management Board\, which supports the training and development of Earl
 y Career Dementia Researchers (ECDRs) across Europe. She actively campaign
 s\nfor improved dementia awareness as a member of the Dementia Carers Camp
 aign Network (Alzheimer’s Society of Ireland) and the Dementia: Understand
  Together Campaign Working Group (National Dementia Office\, Ireland)\nDr 
 Emma Broome is a Senior Research Fellow at the NIHR Nottingham Biomedical 
 Research Centre. Her work focuses on living with dementia\, hearing loss a
 nd the evaluation of digital interventions.\nEmma has previously been invo
 lved in projects exploring how care staff influence the access and experie
 nce of creative activity for people with dementia living in residential ca
 re. She currently holds a Dementia Career Development award looking at str
 ategies to support people living with co-existing dementia and hearing los
 s in social care settings. Emma particularly enjoys working with people wi
 th lived experience of the topic being explored. Emma is the ECR represent
 ative within the NIHR Clinical Research Network Dementia National Specialt
 y Group and a member of the Centre for Dementia in the Institute of Mental
  Health at Nottingham.\n \nTo register your attendance please email nichol
 e.veloso@nottingham.ac.uk no later than 9.00am Tuesday 11 June 2024\, to b
 e added to the electronic Teams invitation list. https://institutemh.org.u
 k/events/event/194-centre-for-dementia-priority-setting-for-research-about
 -dementia-and-hearing-conditions-in-partnership-with-stakeholders
DTSTART:20240612T113000Z
DTEND:20240612T123000Z
LOCATION: ()
SUMMARY:Centre for Dementia: Priority Setting for Research about Dementia a
 nd Hearing Conditions in Partnership with Stakeholders
URL:https://institutemh.org.uk/events/event/194-centre-for-dementia-priorit
 y-setting-for-research-about-dementia-and-hearing-conditions-in-partnershi
 p-with-stakeholders
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