About Us

The National Steering Group for Tics & Tourette Syndrome was formed in September 2021 and has the following primary aims:

  1. To campaign for the development of NICE guidelines to better support services in the referral, assessment and treatment of tic disorders in children & young people and adults.
  2. To work with stakeholders to explore and develop service pathways for tic disorders.
  3. To identify or develop technologies to support healthcare services for tics, including ORBIT
  4. Campaign to increase political & public awareness of tic disorders and the lack of healthcare services

 

Read our Policy Brief here

 

Watch our brief animation here capturing the lived experience of young people, adults and parents trying to access healthcare services for their/their child’s tics:

 

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