CEO of Tourettes Action

In 2021, I spoke at the CANDAL annual seminar, highlighting that Tourette’s affects 1 in 100 children, yet support across the UK remains minimal and inconsistent, with some regions lacking any assistance.

My goal was to encourage attendees to sign a government petition I had created to advocate for better support. After my presentation, Maddie contacted me to discuss how she could contribute, and we began to explore the formation of a steering group to drive change. In January 2022, I took on the role of CEO at Tourettes Action and since this time I have continued to campaign for change and work tirelessly to try and improve the access to diagnosis and treatment.